COVID-19 Resources
With the arrival and spread of the coronavirus (COVID 19) in the United States, our goal is to provide you, our CML community, with resources to help you remain well and virus-free. This page will serve as a repository for links, articles, and videos of particular interest and help to CML patients and carers. The page will be updated regularly and we urge you to follow the instructions offered by the U.S. Centers for Disease Control (CDC), the World Health Organization (WHO), and your local health officials.
Video Updates from Dr. Michael Mauro - Memorial Sloan Kettering Cancer Center (MSKCC), NYC
(Mobile device users -please scroll to the bottom of the page to see the videos)
3/31/2020
CML Specific Links
American Society of Hematology (ASH) COVID-19 and CML FAQ for Physicians and Medical Professionals - Mauro, et al.
iCMLf - CML, TKI treatment and COVID-19 disease - Dr Delphine Rea, Saint-Louis University Hospital, Paris, France and Professor Rudiger Hehlmann, ELN/EHA-SWG for CML
The International CML Foundation's (iCMLf) Covid 19 Information Page
CML Advocates Network - Covid 19 Information
FOR YOUR LOCAL DOCTOR/PROVIDER
Link for how to order BCR-ABL PCR to be performed at the OHSU/Knight lab:
https://knightdxlabs.ohsu.edu/home/test-details?id=BCR-ABL+RNA+PCR+Quantitation+for+Leukemia
Webinars
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COMPLETED - Recording now available - Coronavirus: CML Ask the Expert Live w/ Dr. Michael Mauro, THURSDAY, APRIL 2 at 3pm EST/12pm PST
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COMPLETED - Recording now available. - LLS - Your Questions Answered about Coronavirus - THURSDAY, March, 26, 2020 at 12:00pm EST
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COMPLETED - NORD - Addressing the Covid 19 Pandemic - TUESDAY, March 31, 2020 at 2pm EST
Maps & Location Information
Real-time Coronavirus/COVID-19 tracking - Johns Hopkins University - Tracks the COVID-19 spread in real-time on an interactive dashboard with data available for download.
Covid Near You - a joint venture with Harvard University & Boston Children's Hospital. Created by epidemiologists and software developers at Harvard, Boston Children's Hospital and a group of volunteers from across the technology industry. Covid Near You uses crowdsourced data to visualize maps to help citizens and public health agencies identify current and potential hotspots for the recent pandemic coronavirus, COVID-19.
Public Health Laboratory Testing for COVID-19 (CDC) - map includes states and territories with one or more laboratories that have successfully verified and are currently using COVID-19 diagnostic tests.
World Health Organization (WHO) - Coronavirus disease (COVID-19) Situational Dashboard
Testing
Abbott Launches Point of Care Test to Detect COVID-19
FDA Issues Emergency Use Authorization for Abbott Point of Care COVID-19 Test
FDA OKs Cellex's Antibody Test for COVID-19
Helpful Links on the Disease and Precautions
FDA - Coronavirus/COVID19 Resources for Patients
U.S. Centers for Disease Control (CDC) Covid 19 Information Page
U.S. Centers for Disease Control (CDC - Latest Public Health Information
The World Health Organization's (WHO) Covid 19 Information Page
National Institute of Allergy and Infectious Diseases/NIH - COVID-19, MERS & SARS
National Institutes of Health (NIH) - What People with Cancer Should Know
National Institues of Health (NIH) - Director's Blog - Social Distancing is a Must
National Institutes of Health (NIH) - Latest Research Information
Leukemia & Lymphoma Society (LLS) - COVID-19 Resources and Information
American Cancer Society - Questions to Ask Your Health Care Team
Baker Institute for Public Policy - Hagop Kantarjian, MD's (an NCMLS expert panelist) blog post: THE CORONAVIRUS (COVID-19) PANDEMIC – THE KNOWNS, THE UNKNOWNS, AND A NOTE OF CAUTIOUS OPTIMISM
Siddhartha Mukherjee (author, Emperor of All Maladies) How Does the Coronavirus Behave in Patients? - The New Yorker
FEMA (Federal Emergency Management Agency) Department of Homeland Security - Coronavirus Rumor Control
Medicare/Medicaid
Centers for Medicare & Medicaid Services - guidance during the COVID-19 pandemic.
Medicare & Coronavirus - US Government Medicare guidance during the COVID-19 pandemic.
Veterans & Military
Veteran's Administration - COVID-19 guidance and resources.
Military One Source (US Dept of Defense) - advice and information for the military community.
Navy & Marine Corps Public Health Center - COVID-19 guidance and resources.
Links Discussing Work, Insurance, Student Loans, Taxes, and Managing Finances During Covid 19
Triage Cancer - latest updates about programs and legislation related to COVID-19, that are particularly relevant to the Cancer Community.
What is the Federal Government Doing in Response to COVID-19?
Medicare & Coronavirus - US Government Medicare guidance during the COVID-19 pandemic.
Centers for Medicare & Medicaid Services - guidance during the COVID-19 pandemic.
Veteran's Administration - COVID-19 guidance and resources.
Food & Drug Administration Emergency Preparedness & Response - The FDA plays a critical role in protecting the United States from threats including emerging infectious diseases.
Military One Source (US Dept of Defense) - advice and information for the military community.
Assistance
COVID-19 Emergency Food Assistance Program - This comprehensive program brings together the unique offerings of Team Rubicon, a nonprofit organization that serves communities by mobilizing veterans to respond to natural disasters and humanitarian crises, and Patient Advocate Foundation (PAF), a national nonprofit organization that provides case management services and financial aid to patients with chronic, life-threatening and debilitating illnesses to provide access to food for patients with a current cancer diagnosis, multiple sclerosis or rheumatoid arthritis who experience difficulty accessing food due to COVID-19.
The program will provide an online platform designed to identify the need and location of immunocompromised patients in communities across the United States, and mobilize and match one of Team Rubicon’s 120,000 primarily veteran volunteers, known as Greyshirts, to deliver food and other critical supplies to those patients. The online platform will also allow patients with an identified financial need to apply for a one-time grant of $500 to help pay for food and nutritional needs. Please note that there are eligibility criteria for the grant and all patients may not qualify.
The Lighter Side - Humor
'Humor is Healing': Laughter Soothes Nerves During Covid-19 Trauma - NY Times
10 Covid-19 Memes that Will Bring a Smile to Your Face
The Jaffe Briefing - News with a little satire thrown in.
Coronavirus Rhapsody - sung to the tune of Queen's Bohemian Rhapsody
What's Cookin' - Recipes & Foodie Interests
The Ultimate Corona Burger - The Kroger Co. recipe
Eat it: Hanoi Chef Spreads Joy with 'Coronaburger' - Reuters article
What to Bake During the Coronavirus Quarantine when you're out of Eggs, Milk or Butter - USA Today article
Food Network Star Amanda Freitag has Tips for Cooking Through the Pandemic - NPR article
Easy Pantry Recipes to Cook During Coronavirus Quarantine
Updated: 05/28/2020